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02668 THE PROCESS OF FORMING A COMMUNITY ADVISORY GROUP: EXPERIENCES FROM A FEASIBILITY STUDY IN SOWETO Kubeka, Vinen Introduction: Community involvement is critical to the success of community-based research projects, and increased community participation is likely to result in improved understanding and informed consent among participants. A specific attention was focused on the process of increasing community participation in a feasibility study in Soweto prior to the introduction of a microbicide trial in 2004. Key activities: The process involved the description of the community, the identification of key organizations and structures within that community and the formation of a community advisory group (CAG) which could meet regularly to represent and give and receive feedback from the community on the research processes. In addition, workshops were conducted with a range of community members to provide information about the study, as well as to gain information about the community response to AIDS. Currently the focus is on monitoring community responses to the project. Outcomes: A CAG of 16 people representing 16 organizations in Soweto meets on a monthly basis to discuss and provide input on the research activities related to the microbicide feasibility study. A total of 10 meetings and 2 1-day workshops have been held. A standard operating procedure was agreed and has since been amended based on input from CAG members. The CAG has provided significant insights into the community attitudes to HIV, sexual practices, the role of men in microbicide research and referral of research participants for HIV care. Conclusion: The establishment of an identifiable community representative group has been invaluable in the process of the Microbicides feasibility study because it has facilitated interaction with the community on key issues affecting recruitment and retention. Vinen Kubeka |
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